A message from FHIT instructor Ben:
FHIT friends, I'm so excited to announce that I'm running the ING NYC Marathon 2013 for the Jackson Gabriel Silver Foundation and I need your support! The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa (EB). EB is a devastating and life-threatening skin condition that affects children from birth. Individuals with EB lack a critical protein that binds the layers of skin together. Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.
The Jackson Gabriel Silver Foundation (JGSF) is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota. In three short years, JGSF has raised over $1.5 million and has made a significant difference in the field of EB research and the pursuit of a cure.
Jackson's parents, Jamie and Alex, are great friends and FHIXers of The Fhitting Room and we want to show our support in their continuing search to end EB, so please join me as we raise money for this amazing cause!
Learn more about Epidermolysis Bullosa and the incredible work of the Jackson Gabriel Silver Foundation by visiting their website.
Visit my team JGSF NYC Marathon 2013 fundraising page.
Thank you all for your support in continuing our mission!